So a doctor tells me today that I have Ehlers-Danlos syndrome, the hypermobility type.
That apparently explains the pains in the wrists, shoulders, and possibly right ankle. I was able to look up some information online, but I wasn’t able to find treatment to manage the symptoms. Well, one site mentioned treating it like rheumatism.
I guess I should start carrying a card in my wallet to let people know.
I found a list of symptoms of Ehlers-Danlos Symdrome on the UW Medicine site.
- skin problems – Yes, around fingers
- soft velvet-like skin – I wish
- fragile skin that bruises or tears easily - No
- stretchy rubber band-like skin – No
- easy or severe bruising – No
- poor and slow wound healing (usually taking weeks to months to heal) – Maybe, my ankle is taking a long time to heal
- small harmless bumps under the skin - No
- joint problems - Yes
- loose unstable joints causing frequent dislocations usually occurring in the shoulders, knees, hips, collar bone or jaw - Yes
- double jointedness (hyper extensible joints), extreme in some cases – Yes, shoulders, thumbs, others places
- joint pain from frequent dislocation – Yes, shoulders, wrists, knees
- eye problems – Maybe, this isn’t very definite. I do have eye problems but I don’t know if they are related.
- nearsightedness, occasionally extreme – Yes, have worn glasses since a child.
The doctor I saw today noticed the hypermobility – the wrists, ankles, and other joints able to bend far, and shoulders and wrists dislocate and relocate at will.